When Chris and I went home that night, it was difficult to be optimistic. His future was in the hands of faceless bureaucrats who would look at their balance sheets rather than the human cost of not authorizing the drug we now felt to be our only hope. I clung to what the doctor had said. I had no aversion to moving house; I’d done it plenty of times before, and this time it would be for a better reason than itchy feet. ‘Why don’t we move to Scotland?’ I said to Chris. He had worked there many times and liked it, and I would do anything to increase his chances of surviving. We discussed it well into the night, and I would have been quite happy to start packing the next day, but Chris is more pragmatic and suggested we wait to see what the health authority said; perhaps they would surprise everyone.
They didn’t. They refused the application.
The consultant was furious. He had done more research by this time and concurred completely with the Hammersmith doctor that this drug would give Chris the best chance. He went back to the health authority many times, pleading the case, making strong arguments, but they were difficult. In the end, he wrote the prescription anyway.
It was a miracle drug. Chris was in remission within a year and his case persuaded the authority to prescribe it much more freely when they saw the results. I was still so angry though. It infuriated me that my husband’s health, his life, had been considered to be worth so little. If that drug had never been prescribed, he wouldn’t be here today nor would all the other people who were given it as a result of his test case.
While Chris was terribly ill, the cats sensed something was going on. They became very gentle and watchful with him, and there always seemed to be one of our furry boys or girls sitting beside him when he was too weak to move or too sick from the treatment to get off the chair. While humans sometimes feel awkward or useless in the face of serious illness and the possibility of death, animals seem to take it in their stride, offering love and comfort in a simple way that does so much to help.
Ginny used to curl up beside him no matter how ill Chris was. She gave him such love, and even used to bring him presents of worms and baby frogs. There was never a mark on them, even though she used to carry them home in her mouth. She would deposit them in front of Chris as if she needed to give him something. Cats seem to need to do things for us just as we need to do things for them.
As Chris gradually got better, I felt that we had escaped. Perhaps now we could settle into a normal life, free of worry and concern. Casper’s adventures brought joy to our days, and he managed, in some part, to tackle and negate the terrible negativity that I’d previously felt about humanity.
CHAPTER 24
It was 8.45a.m. on 14 January 2010 when I got the knock at my door that I’d always dreaded.
I was halfway through getting dressed when I heard the noise. It could have been anyone, I suppose – a delivery, some early post, a neighbour. But I knew I just knew, as I walked down the stairs, that as soon as I opened the door, the rug would be pulled out from under me. Do we have some sort of sixth sense when bad things, awful things, are about to affect our lives? Not always – there can be a phone call in the middle of the night that we never expected or a letter that contains information that will change our lives, and they are bolts from the blue. However, I’ve always had feelings about things – premonitions and senses. On this day I desperately wanted to be wrong, but a sense of foreboding warned me against opening the door, told me not to listen to whatever the person on the other side had to say. Sadly, I had no choice. I had to open the door.
Waiting for me on the other side was a lady I vaguely knew. She lived in the same street and I often saw her walking past with her little girl. We had said ‘hello’ and exchanged a few words about Casper from time to time, and she was always friendly and interested in what he was up to. That day she was as white as a ghost and shaking.
‘I’m so sorry,’ she said. ‘I’m not sure how to tell you this but . . . it’s Casper. He’s been hit.’
I listened to the words but they were no surprise to me. Since the moment I’d heard the doorbell, I’d known this was it. This was the moment when all my worst nightmares were about to come true. I felt as if the woman’s voice was coming through a tunnel as she continued to tell me what had happened. It came to me in fragments . . .